Friday, 11 June 2010
Good news in a way - Paul & I spent 1 1/2 hours at hospital yesterday with the Transplant co-ordinator. Very nice lady explained lots of things to us. Too much to take on board at once but don't need to panic yet - rate of deterioration could be about 12-15 months before he needs to go on transplant list - so breathing space available. Time to sort house out in readiness. Sorry for no photo's this time will post some over the weekend.